Nora was born on 4/27/07 by emergency c-section. Due to intestinal malrotation with midgut volvulus 95% of Nora's small intestine had to be removed just hours after her birth leaving her with only 4.5cm of small intestine. This blog is dedicated to sharing Nora's journey with Short Bowel Syndrome.
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Nora's Medical Care
Reading Material
- Children’s Hospital Boston
- Enhancing Gut Adaptation
- FDA’s IND Application Process
- Oley Foundation
- Omegaven – *Ordering Info
- Omegaven – Boston Globe Article
- Omegaven – CHB Article
- Omegaven – Max’s Wiki
- Omegaven – Newsday Article
- Omegaven – Pediatric Article
- Omegaven – Taiwan Univ. Hospital
- Omegaven – The Right Kind of Oil
- Omegaven – The Star Article
- Omegaven – Vital Choices Article
- Omegaven – Wall Street Journal
- Prebiotics
- Probiotics: Natures Therapy
- SBS Yahoo Group
- Shadow Buddies
- Short Bowel Syndrome – eMedicine
- Short Bowel Syndrome – Max’s Wiki
- Short Bowel Syndrome – Wikipedia
- SiCKO Health Care Card
- Small Intestine Transplant
- STEP Procedure
- The Government’s Big Fish Story
- Total Parenteral Nutrition (TPN)
- United Network for Organ Sharing
- UNOS Transplant Data
Short Bowel Blogs
Donation Requests
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Omegaven
TPN associated Liver Disease
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Short Bowel Syndrome
Total Parenteral Nutrition
Lipids
Bilirubin
STEP Procedure
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January 3rd, 2009 at 7:13 pm
Thanks so much for the adorable card! Happy New Year to all too! I just love the pictures on the card, especially the bubble and princess ones!
January 13th, 2009 at 11:22 am
Happy, Happy, Happy!!!!
We love and miss you guys!