Archive for March, 2010

Playdate with Maya

March 27th, 2010

Nora had her first official “playdate” with my good friend Elizabeth’s daughter Maya this week. Nora has played with cousins at family get togethers, and we’ve met up with some friends and their kids at a park a few times but this was the first time that Nora had a friend over on her turf to play.


It was absolutely wonderful, Nora and Maya got along great and had a blast just being two sweet little girls together. Maya is just 9 months older than Nora so they are close enough in age to make good buddies.

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(as you can see by Nora’s bloated belly, she was having so much fun she wouldn’t even stop to poop even though I knew she had to and kept trying to get her to!)

We’ve been guarded with Nora’s interactions with other kids from the start to lesson the chances of her getting sick. But we also haven’t wanted to keep her too isolated and keep her from socializing and playing with other kids. It’s been a hard balance, we’ve been trying to have playdates for a while but it seemed that every time it was about to happen the other child would come down with a cold or some other sickness. So this playdate was a long time coming and very good for our hearts and souls. Elizabeth and I are planning to make a Maya and Nora playdate a weekly event.


I think this is just the beginning of many fun happy moments to come. :)

On a side note, Nora hasn’t said “blah, blah, blah” since she learned that it will get her a quick ticket to time out. Like any little one her age she likes testing the waters but she’s a smarty and is learning fast that time out is no fun.


Blah, blah, blah…

March 21st, 2010

Apparently that is what Nora hears when I am telling her why she shouldn’t be doing something after mommy has already told her not to. With Nora’s ever growing toddler independence, boundary challenging and general mischief making she has been coming up with different ways to let us know that she does not like being disciplined. Most recently she will look me straight in the eye and say “blah, blah, blah” while I am telling her why she needs to obey after she has done something that she knows she shouldn’t be doing. This girl is barely 3 years old – I thought that was the mindset of a teenager?!? Oh jeez, we’re in for it already.

Every child goes through the phase of wanting to put everything and anything into their mouth. As a younger baby Nora seemed to have skipped over this phase but she sure is making up for it now. From sneaking a drink of soapy water to chewing on curly ribbon…..did we really think we were going to be so lucky to miss that phase? Well yes, we foolishly did but we were wrong. When I caught her chewing on the curly ribbon that really through my nerves for a loop, thinking about what could have happened if she had swallowed it….ugh.

Our big girl toddler Nora is certainly keeping us on our toes and although sometimes it can make you want to pull your hair out you gotta appreciate her creative ways and love that she’s just being a typical toddler. A typical toddler with medical sense and IV’s is proving to be an interesting experience. The other morning Nora was ready to run around before her TPN was finished infusing, getting impatient with being restricted by the pole she picks up her line and says “I need some scissors!”

And when she pretends to put port needles in her dolls and stuffed animals and tells them they are going to the hospital, a part of me can’t help but be a little sad that this language is even part of her world. But then the short lived sadness is overridden by the fact that that all of her medical pretending is always in a happy and positive way and I know that it is a good thing for her and just part of her everyday normal.

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She may have a short bowel but we don’t see anything short of a typical, happy, silly toddler. Do you? :)


Intestines grown from stem cells

March 17th, 2010

Yesterday I was having bit of a ho-hum day until I checked Max’s blog and read the latest entry which linked to this article

Talk about about turning my mood around! Even though the research is just in the very beginning stages and nothing has been published in a scientific journal yet, this is HUGE news for the short bowel world. Thank you Yuko for posting such amazing news to bring us to a whole new realm of medical possibility and hope!


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