Archive for the 'Nora Medical Updates' Category

June 5, 2007


June 5th, 2007

Today Nora’s feeding schedule was changed back to all G-tube feedings for at least 24 hours because she couldn’t tolerate the 3 bottles a day with G-tube feedings at night. She had three big watery poops and lost 3 ounces today. :( But overall she is still doing very well for everything her little body has been through. Dr. Patterson (her doc at TMH) is working with the doctor in Boston (Dr. Puder) to get her on Omegaven as soon as possible, hopefully by the end of this week. The only thing holding us up at this point is getting FDA approval since Omegaven is still a trial drug. As long as things continue to go as they have been the plan is to have her home by early next week. All of the details for home health care are being worked out and the wonderful staff at TMH are getting us lined up to head home. Yay! The next step is to head down to Shands for an evaluation with their gastroenterologist and then up to Boston for an evaluation with Dr. Puder and the team and Boston Children’s Hospital.

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June 4, 2007


June 4th, 2007

A 20 calorie formula seems to agree with Nora’s system much better. She had a large poop this morning with more consistancy. Her labs showed her red blood count has been low. We are hoping it is just all the blood they have had to take for the tests. They began giving her additional iron today to try to get her red blood count up.

She slept most of the day and seems happy :)

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June 3, 2004


June 3rd, 2007

Nora had 2 watery poops again today. They decreased her formula from 24 calorie to 20 calorie but kept her feeding schedule the same.

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June 2, 2007


June 2nd, 2007

Today Nora had a upset tummy and 2 large, watery poops :( The doctors think it may be the 24 calorie formula causing the problem.

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June 1, 2007


June 1st, 2007

To get Nora on a more regular feeding schedule today she will begin eating 3 30ML bottles during the day, 4 hours apart (10am, 2pm, 6pm), and be on continuous G-tube feedings from 8pm to 8am. Her formula was increased from 22 calorie to 24 calorie and a multi-vitamin was introduced to her diet. She had a large poop. She weighs 8lbs 7.7oz

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May 31, 2007


May 31st, 2007

Increased feedings to 10 ml/hr of Elecare. She now weighs 8 lbs 7 oz. Nora had her second HIDA scan today. Unfortunatley the dye didn’t make it past her liver again. The doctors think it is the TPN gunking up her system.

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May 30, 2007


May 30th, 2007

Keeping feedings on Elecare at 9 ml/hr. Nora now weighs 8 lbs 3.7 oz. Nora’s 14F G-tube was replaced with a 16F today. The next size up will be an 18F which will allow for her to get a button instead of a long tube.

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