Archive for the 'Nora Tidbits' Category


April 30th, 2010

We usually only make posts on Nora’s blog that are directly about her or SBS. But with this circumstance I felt that we needed to utilize Nora’s blog to help spread the word about Sunday Blombergh who has been missing since last Thursday. We do not know Sunday directly but a family who is near and dear to our hearts knows her. Please look at these flyers and keep your eyes open. She lives here in Tallahassee, FL but was last seen in Tifton, GA. If you have any information please contact me ASAP and I will direct you to her family. Or if you are on FaceBook please visit the page that has been created about her disappearance. Here is the FaceBook link:!/group.php?gid=112721198763582&ref=ts

If you click on the flyers it will open in full size.

Thank you for taking the time to read this.


Happy 3rd Birthday Nora!!

April 27th, 2010

Today is Nora’s 3rd birthday! How happy we are that we are three years down the road from where we started on this journey with a strong, happy and healthy Nora.

We’re having a little birthday celebration this afternoon at Nora’s favorite park so I’ll be sure to post some pictures of her party later. But for now here are some of the big birthday girl this morning dancing it up in dress up clothes from cousin Marin. Thank you cousin Marin for making Nora such special birthday decorations, having them here makes the day extra special. :)

We took Nora to Toys-R-Us over the weekend for her to pick out a few toys as an extra birthday treat. Our girl is a natural shopper. :)

She was quite in awe when we got to the aisle with all of the talking puppy pets.

Look at the smile on her Daddy’s face in the background. That’s one happy, proud Dad. :)

Happy Birthday sweet Nora, we love you so much!!

(If you looked at Nora’s site on her actual birthday yesterday, this really didn’t get posted until 4/28, even though I wrote it yesterday morning, couldn’t get it to post until now)


Playdate with Maya

March 27th, 2010

Nora had her first official “playdate” with my good friend Elizabeth’s daughter Maya this week. Nora has played with cousins at family get togethers, and we’ve met up with some friends and their kids at a park a few times but this was the first time that Nora had a friend over on her turf to play.


It was absolutely wonderful, Nora and Maya got along great and had a blast just being two sweet little girls together. Maya is just 9 months older than Nora so they are close enough in age to make good buddies.

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(as you can see by Nora’s bloated belly, she was having so much fun she wouldn’t even stop to poop even though I knew she had to and kept trying to get her to!)

We’ve been guarded with Nora’s interactions with other kids from the start to lesson the chances of her getting sick. But we also haven’t wanted to keep her too isolated and keep her from socializing and playing with other kids. It’s been a hard balance, we’ve been trying to have playdates for a while but it seemed that every time it was about to happen the other child would come down with a cold or some other sickness. So this playdate was a long time coming and very good for our hearts and souls. Elizabeth and I are planning to make a Maya and Nora playdate a weekly event.


I think this is just the beginning of many fun happy moments to come. :)

On a side note, Nora hasn’t said “blah, blah, blah” since she learned that it will get her a quick ticket to time out. Like any little one her age she likes testing the waters but she’s a smarty and is learning fast that time out is no fun.


As Promised…

February 28th, 2010

Fun times had in February :)

A Valentine’s Day visit with Mamma Tom.
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What a great way to spend Love Day…..

Nora put herself on seagull patrol at Lake Ella. Get out of here gulls, this is duck territory!
click here to see Nora “scramming” off the seagulls
Our little southern accent girl, who knew that “scram” could be a two syllable word? (and yes fellow germaphobes,  I Purelled her hands immediately after turning off the camera) :)

Took NeeNee’s doggie Lizzie for a stroll…
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Nora got such a kick out of pushing Lizzie in her stroller. She would have pushed Lizzie around all day, and I think Lizzie would have let her.

Had a dance with her shadow and a big laugh with Uncle Kia at Lichgate.
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Then the same afternoon Pappy and Daddy fixed Nora’s slide, made for one happy day!

We ended the month by getting Nora’s garden going. She is quite the little helper. Springtime, we are ready!
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Nora is such a happy and imaginative little girl. She is always making Montana and I laugh, taking us by surprise with the stuff she comes up with. The other night she was quietly playing in her room, Montana went to check on her and found her hammering on herself all over her body with her toy hammer. She wasn’t hurting herself so Montana just watched to see what the outcome was going to be. After a few minutes of hammering and rubbing the toy screw driver on her face she said “There, I’m all fixed!” I’m sorry I missed seeing that one for myself.

A couple more fun February moments, click the links to watch.

This last one is really short but I just had to share Nora’s “goatee”.


Update comming soon

February 19th, 2010

Sorry for the lack of Nora updates, things have been a little hectic the last few weeks. I promise I’ll be making a Nora update soon but for now here are some pictures of our sweet, happy girl.

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The Year of Nora!

January 24th, 2010

It’s hard to believe that the first month of the new year is already almost gone. Our little family has been busy with typical life stuff and Nora is chugging along and doing great.

We wrapped up 2009 with a trip to the Sopchoppy River to visit my dear friend Ida who was in town for the holidays. Her parents live right on the river so we got a chance to take Nora out in a canoe for the very first time. It was just a short stroll in the water to see what she thought about it all and she did great and loved every minute of it. Before Nora was born canoeing was a regular hobby of ours which we haven’t done since my early pregnancy. You can see by the smiles on my face that this experience made me one happy mamma. :)

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Watch out 2010, this is only the beginning….I see many canoe trips and more fun adventures than ever before in our near future. I am proclaiming 2010 as the Year of Nora! Not to sound braggadocios but I am saying it with pure optimism and hope, although I’m never shy to brag about my girl. :)

Each year since Nora has been born has come with many challenges and hardships but they have also come with overwhelming happiness and amazement at the many huge successes our Nora girl has made. Medically and socially I just can’t help but believe that this will be Nora’s biggest year yet. We have high hopes of finally getting Nora off of TPN for good this year. She has really beefed up her oral intake and is only on 3 nights of 335ml TPN which is a very low dose. We’ve been talking with her GI doctor and nutritionist and plan to start decreasing her TPN even more soon. The plan will be to take her off Omgaven first to see if she can handle not getting fats intravenously and go from there. But even if this isn’t the year for her to be able to get off TPN completely we know she’ll continue to make leaps and bounds.

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Nora snuggeling up to our good ol’ cat Maxwell.

Nora had a nice visit with her Uncle Kia (Montana’s brother) this weekend.
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With her fishing hat from Uncle Kia and her boots Nora is all ready for a fishing trip!

On the social front, we are planning to finally get Nora up to visit my family in Kentucky this spring. This is something we’ve been long awaiting and very much looking forward too. Some time on my dad’s farm and visiting with family is just what we need. We will still be cautious with Nora when it comes to germ exposure but we are really planning to open up her social horizon more than ever this summer and hope to have many play dates with friends and family.

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See ya 2009!

December 31st, 2009

Oh what a year it’s been……as I sit here on the last morning of the year thinking back on the last 12 months and watching Nora play with all of her Christmas toys it makes my heart smile to just observe the pure miracle of her.

Then she asks me to close her up in her new castle tent, I peek in the window to see what she’s up to and she sweetly says “I want you to go bye-bye now mommy” and then my ushy gushy heartfeltness turns into laughing out loud and amazement in what independence my little Nora already has. That independence became very apparent on Christmas morning when we heard “I want to do it myself” many times every time we would try to show her how to work one of her new toys….oh what a stinker. :)

Christmas Eve delivered a very special present for all of us, Santa Crooms, I mean Dr. Crooms came by to visit Nora and bring her a present between surgeries…..amazing…. is the only word that comes to mind. We are so very blessed to have him in our lives. Who would have ever thought 32 months ago on the day that Nora was born such a special bond would have been formed between Dr. Crooms and our family.

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To say that Nora loved her puppy from Dr. Crooms would be an understatement.

We know that Nora is a very special girl as well as a very special medical case. But we also know that Dr. Crooms has preformed many life saving surgeries and has probably saved the life of a newborn before. But we’ve always wondered why Nora made such a strong impression on Dr. Crooms for him to take such a personal interest but of course not wanting to be too blunt to ask him to explain. Well I think we got our answer when I called to wish him a Merry Christmas on Christmas day and thank him for taking the time to visit Nora. I was telling him how much we appreciated him being in Nora’s life outside of the medical world and he said “I will be a part of Nora’s life as long as I am around. She is such a special miracle and reminds us all of how life should be.”

Thank you Dr. Crooms, thank you with all of our heart and soul for saving Nora’s life and being such a wonderful, caring person.

Christmas morning

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So many presents for one little girl, a brunch break was required to keep up the Christmas marathon…..

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Sooo happy :)

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An afternoon tea party in her new PJ’s

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More Christmas celebrating into the evening and Nora helped with the cooking.
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christmas-2009-036.JPG We hope everyone had a very Merry Christmas and wishing you a very happy New Year!


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