Life is Good :)
Well Nora’s Bilirubin took a good dive again this week! It’s down to 5.5 from 6.8 last week. ๐ Omegaven rocks!!
2 Hours Closer to Freedom!
We started tapering Nora off of her hours on TPN on Friday. So today will be the 4th day that she gets a 2 hour break from bei
It Works!!
Well we are very happy to share Nora’s bilirubin number for the week…..drum roll please…….6.8 down fro
Happy 4 Month Birthday Nora!!!
Yesterday was Nora’s 4 month birthday. She enjoyed the day by taking lots of naps and a little b-day celebration with mo
Let the Good Times Roll!
Lots of good news to report! The Omegaven therapy is going very good, even though Nora’s Bilirubin went up to 10.7 this
Our Angel
First Omegaven Dose Done!
Well Nora handled her first dose of Omegaven just like we expected, with no side effects or reactions! She awoke bright and sp
Home Again!
Well Nora once again blew off the fever and recovered like a champ! ๐ This time it looks like it was viral and not an infec
2 Steps Back
Well Nora is back in the hospital again ๐ Nora came down with a fever yesterday thatย quickly spiked to 103 so she was adm
Happy 3 Month Birthday Nora!!
Today was Nora’s 3 month birthday and it was a great day! We celebrated by taking Nora for a walk around Lake Ella and f
Omegaven! On Its Way! YAY! YAY! YAY!
Well folks we have some GREAT news. We have finally gone through all the red tape and have approval for the Omegaven here in T
#1 Short Bowel SURVIVOR!
Well we had been slowly introducing more bottles by mouth and less feeds through her feeding tube and today makes day 5 of ALL
Healthily Hopping Along
Hello Everyone! We are very happy to give a Nora update to report that the blood in her stool has disappeared all together. Sh
Dr. Crooms Is Our Hero!
This thank you post is LONG over due. We wanted to wait until we had a picture of Nora with Dr. Crooms to make a post and we f
Update
Hi everyone! Sorry for the long lack of updates but time is limited these days. We updated the photo gallery tonight and will