No surgery today, hooray!
Nora’s port definitely has some issues but they are manageable for now and we’ll just keep using it as it is until
Port Police – help!
This may sound totally insane but I’ve always thought that Nora knows a lot more than a typical child her age should, ev
Gavin Owens
I rarely ever post on the blog anymore, partly due to a lack of time and partly because Sarah keeps up with it so well and enj
Missing our long lost friend sleep
Since our journey with Nora began two and a half years ago many of our friends have long disappeared. Of course we miss them b
A trip to the Museum of Natural History
We took Nora to the Natural History Museum a couple weekends ago and she had a blast romping around the grounds checking out t
Rain, rain stay away!
It has been raining here everyday for over a week straight and thankfully we finally got a much needed break from it today. Si
Happy Grandparents Day!
Happy Grandparents Day from Nora! Nora is a very lucky little girl, she has not just 2 sets of grandparents but 3! (since both
Back at home and doing good
Nora’s port replacement didn’t go quite as smoothly as we had all hoped it would but the old one is out, the new o
Time for a new port
Nora will be having surgery first thing tomorrow morning to have her original IV port removed and a new one placed on the othe
Fun with food
When dealing with short bowel syndrome food and eating is full of challenges and aggravation. But at the same time it can also
Maybe next year
Last week the Oley Foundation held its annual conference. For those of you that are unfamiliar with Oley, it is a wonderful no
“I feel much better!”
That is what Nora told us after just one night back on TPN. Where as the few days prior she had been telling us that she felt
An Unexpected Experiment
Sorry for the lack of posts lately and if it caused anyone to worry about Nora. Some of you have sweetly expressed concern sin
Still Celebrating
Nora turned two years old two weeks ago and we are still celebrating. Although, I don’t think we’ll ever stop cele
Food Allergies
We had Nora tested for food allergies a couple of months ago and it has really helped with figuring out what foods may work be