Today’s needle changing went great. Nora didn’t shed a single tear. She got a little suspicious when we weighed her but then was completely content in her daddy’s arms while Virgina did her assessment, put in a new port needle and I held a valentine balloon for her to look at. We will definitely continue the tag team approach from now on. Nora gained 3 oz from last week so her TPN rate will be decreased to 15ml/hr for 12 hours a day and stay at 17ml/hr for the other 12. If she has a gain at next weeks weigh in then she will go to 15ml/hr 24 hours a day. 🙂
YEAH!! Glad things went smoother for all of you this time!
great news about the tpn. really looking forward to seeing the look on her face when she’s off the line and can run and play.
Hi there.
Forgive me if I seem forward….I just came across your website tonight for the first time. I was looking at your daughters labs and noticed it was from LabCorp in Tampa, FL. I too, live in central Florida and have a son with SBS. I would absolutely LOVE to share with you and compare notes regarding our babies. Your daughter looks SO GOOD!
I hope to hear from you. Take care. 🙂
I am just astonished at how far this little girl has come. From the day one picture, which was definately a difficult time, to the fuzzy haired angel—WOW what a miracle she is. What I’m loving best is the beautiful pink skin and the pudge rolls under her neck in side shots. I’m happy to see that she still has the sweet, sweet face of our ‘little pumpkin’ in Room 257. Nora, your NICU nurses love you always! Take care of your mom & dad, because they’re the Best!