Archived Medical Updates (old posts made by my parents about me)

Happy 4 Month Birthday Nora!!!

Yesterday was Nora’s 4 month birthday. She enjoyed the day by taking lots of naps and a little b-day celebration with mo

Let the Good Times Roll!

Lots of good news to report! The Omegaven therapy is going very good, even though Nora’s Bilirubin went up to 10.7 this

Quick Update

I just wanted to let everyone know Nora is doing GREAT on the Omegaven.ย  She had no side effects as expected and it seems to

First Omegaven Dose Done!

Well Nora handled her first dose of Omegaven just like we expected, with no side effects or reactions! She awoke bright and sp

Oh Happy Day!!

Nora started on Omegaven today, YAY, YAY, YAY!!!! It’s been a long time coming and the culmination of work and persisten

Omegaven is almost in our grasp!

Well we really should be getting Omegaven by next week. (how many times have we said that?!) But this time it has to be true,

Home Again!

Well Nora once again blew off the fever and recovered like a champ! ๐Ÿ™‚ This time it looks like it was viral and not an infec

‘SiCKO’ Health Care Card

This gave me a much needed chuckle plus I printed one out just in case ๐Ÿ™‚ From Michael Moore’s website in connection w

Quick Omegaven Update

Well I called the division of the FDA in charge of the final approval process and of course the guy we have been dealing with

2 Steps Back

Well Nora is back in the hospital again ๐Ÿ™ Nora came down with a fever yesterday thatย  quickly spiked to 103 so she was adm

Happy 3 Month Birthday Nora!!

Today was Nora’s 3 month birthday and it was a great day! We celebrated by taking Nora for a walk around Lake Ella and f

Omegaven! On Its Way! YAY! YAY! YAY!

Well folks we have some GREAT news. We have finally gone through all the red tape and have approval for the Omegaven here in T

#1 Short Bowel SURVIVOR!

Well we had been slowly introducing more bottles by mouth and less feeds through her feeding tube and today makes day 5 of ALL

Healthily Hopping Along

Hello Everyone! We are very happy to give a Nora update to report that the blood in her stool has disappeared all together. Sh

Two Steps Forward One Step Back

Well there has been a lot going on with our little sweet pea these past few weeks. Lots of positives and one set back which th