It Works!!

Well we are very happy to share Nora’s bilirubin number for the week…..drum roll please…….6.8 down from 9.0 last week and 10.7 the week before! It hasn’t been that low since the beginning of July!! We were expecting a lower number this week because of the obvious whitening in her eyes and skin but that much of a drop in one week wasn’t expected. Hooray for Omegaven and Dr. Puder for discovering it’s amazing healing power! We hope next week she is even lower.

More good news to share is Nora’s weight gain. She now weighs 12lbs. 7oz. We were starting to worry because she held tight at 11lbs 15ozs for a couple of weeks so we were very pleased to see her new weight. Since she is doing so well we will begin dropping hours on TPN tomorrow!

Our biggest concern for the moment is a fine, red rash that developed last week on Nora’s back and tummy. It kind of looks like heat rash but she hasn’t been outside during the hot hours nor has she gotten overheated recently. It doesn’t seem to bother her at all so that’s good. Our home health care nurse has been keeping an eye on it and we spoke to her pediatrician about it and neither of them think it’s concerning. We asked Dr. Puder if he had seen any Omegaven related rashes and he hasn’t. We’ve been putting fresh aloe on it and it seems to be clearing up. We wanted to try the natural approach first before trying hydrocourtazone cream since it contains steroids, poor baby has enough going into her system already.