I am pretty tired so I am going to keep this short but we have some VERY exciting news to share…….
We took Nora to Shands Hospital today for a checkup and they thought she was doing great. They were actually completely stunned by her progress. So much in fact that they suggested we try and see how she does WITHOUT TPN at all!!!! So starting this Monday we will start dropping her TPN rate and hopefully within ONLY TWO WEEKS we will get to disconnect her from the TPN completely and be line free!
Sarah and I can’t even hardly get excited yet as it seems very unreal at the moment since were told from the beginning Nora would most likely need TPN and a Feeding Tube forever. To think Nora has a very good chance of being off of all this crap before her 1st birthday is a dream come true 🙂
One of us will post the full details soon but I wanted to be sure everyone who follows our little Nora got this great news asap.
I have tears in my eyes and chills from head to toe!!! I am SOOOOOO happy for Nora! She has been such a trooper through all of this! I will continue to keep her in my prayers to get her through these next few weeks!! WOW!!
amazing. just amazing. i couldn’t be happier for you guys.
Great News! You big, little bundle of joy, I felt compelled to post the Bible Verse I have read and spoke over and over for you since birth,
Proverbs 9-11 God is speaking ” For by Me, yours days will be multiplied, and the years of your life will be increased”!
Love aunt Linda
What a wonderful gift!!! You need to throw a TPN-free party using some TPN supplies as party favors etc, etc. LOL!!!!
AMAZING! Go Nora!